LINKS
Websites of foundations, associations and research centres on rare diseases in general and, specifically, on mitochondrial and neuromuscular diseases. These websites provide useful information for CMT patients about lifestyle, healthy food habits, potentially harmful drugs etc. For your convenience, the list includes an indications of languages used on the websites.
RACCOMANDAZIONI PER L’ANESTESIA NEI PAZIENTI AFFETTI DA MALATTIE NEUROMUSCOLARI A CURA di F. Racca, T. Mongini, N. Passoni [IT]
Recommendations for Anesthesia and Perioperative management of patients with neuromuscular disorders [EN]
Centro Dino Ferrari [IT, EN]
Orphanet [FR, EN, ES, DE, IT, PT]
National CMT Resource Center [EN]
Associazione Rete Malattie Rare [IT]
UILDM – Unione Italiana Lotta alla Distrofia Muscolare [IT]
AIM – Associazione Italiana di Miologia [IT]
Registro dei Pazienti con Malattie Neuromuscolari ONLUS [IT]
Associazione Italiana Calpaina 3 [IT]
Myobase: le portail documentaire sur les maladies neuromusculaires (AFM – Téléthon) [FR]
