This non-profit association aims to create a network for Italian and foreign families of patients affected by CMT2A, as well as to promote collaboration with researchers and medical professionals and to raise funds to be devolved to scientific research on CMT2A. Also, the association is committed to organise and promote events, conferences and meetings to raise awareness on this rare disease.
To get the attention of researchers and pharmaceutical companies we need to create a strong group. To do so, we need the help of diagnosed patients and their families. Join our association to fly together towards the cure!
JOINING THE ASSOCIATION IS EASY!
E-mail us at:
or call Mrs Luisa Perrero Porzio 0039 333 4376215
for more information about membership options for patients, families, friends and supporters.